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The Florida Department of Health works to protect, promote & improve the health of all people in Florida through integrated state, county, & community efforts.

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Bureau of Public Health Laboratories Newborn Screening

Contact the Newborn Screening Laboratory

  • 904-791-1645
  • Mailing Address

    Newborn Screening Laboratory

    1217 North Pearl Street

    Jacksonville, FL. 32202

Newborn Screening (NBS) is a population-based, preventive public health program that is provided in every state in the United States and in many countries throughout the world.  The intent of the Florida Newborn Screening Program is to screen, identify, diagnose, and manage newborns at risk for selected disorders that, without detection and treatment, can lead to permanent developmental and physical damage or death.  The goal of newborn screening is to facilitate prevention of developmental impairments, delayed physical growth, severe illness, and death through early detection and intervention.  With appropriate and timely treatment, newborns identified through the Newborn Screening Program will have the opportunity to grow and reach their potential.

Since early detection and treatment are so important with these conditions, be sure to tell the hospital the correct name and phone number of your baby's doctor so they can reach you if the screening results for your baby are abnormal. If your baby's doctor does contact you, it does not mean that your newborn has the condition but it is important that you follow the doctor's instructions immediately in order to determine if treatment will be necessary. If you do not hear from your doctor, make sure you ask about the results when you see your baby's doctor for his/her first appointment.

Request for Newborn Screening Laboratory Report
For non-hospital healthcare providers requesting a newborn screening report, please go to www.fnsr.net to obtain an electronic copy.  If not registered to access the web site, please call 850-245-4201 and select Option #1 to register.  For other information, please call 866-804-9166.

How is Newborn Screening Paid for in Florida?

Newborn Screening services in Florida are jointly funded through billing Medicaid and private insurance for the newborn screening tests and a $15.00 fee paid by birthing facilities for each live birth. Florida Newborn Screening does not bill families without insurance coverage.

Newborn Screening Policies

Opt-Out:  While it is not encouraged, parents may refuse newborn screening for their newborn for any reason. The person responsible for collecting the specimen must collect a written refusal from the parent that must be put in the medical record.
 
Storage and Use of Dried Blood Spot: After the newborn has been screened for all conditions, both the blood specimen and the related information will remain for a designated period of time. The laboratory must maintain records of screening results and follow-up testing for at least seven years. Residual blood specimen is stored for six months, after which the specimen is destroyed. The health department safeguards all information sufficiently to ensure the confidentiality of individuals in the program.

Conditions Newborn Screening detects*

Links to Additional Resources

Additional info about baby's first test 
 
Disorder fact sheets
       
Genetic Conditions

Information for Parents fact sheets

NOTICE To All Users of Newborn Screening Specimen Collection Cards (DH677):
If you have any expired specimen cards, please DISCARD them. Specimens collected on expired cards will be REJECTED.
 
ACCEPTABLE cards have the following lot numbers and expiration dates:
 
Lot W111 Exp Date: 2014-07
Lot W111 Exp Date: 2015-01
Lot W112 Exp Date: SEP-2015
Lot W113 Exp Date: FEB-2016
Cards with lot numbers higher than W113
 
Fax a request to Newborn Screening Laboratory if more cards are needed.
Attention to: Nita, Joan or Danielle Fax: 904-791-1637
Phone: 904-791-1572

Order form for newborn specimen collection cards (DH 677)*

Contact

Telephone:
(904) 791-1645

FAX:
(904) 791-1644
 
Mail:
Bonifacio (Jojo) Dy, M.D.
Acting Newborn Screening Laboratory Director
1217 N. Pearl St.
Jacksonville, FL. 32202

*Note: This page contains materials in the Portable Document Format (PDF).  The free Adobe Reader may be required to view these files.