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The Florida Department of Health works to protect, promote & improve the health of all people in Florida through integrated state, county, & community efforts.

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Genetics and Newborn Screening Advisory Council

Contact the Newborn Screening Program

The Genetics and Newborn Screening Advisory Council's purpose is to advise the department about:

(a)  Conditions for which testing should be included under the screening program and the genetics program. Within 1 year after a condition is added to the federal Recommended Uniform Screening Panel, the council shall consider whether the condition should be included under the state’s screening program.” 

(b)  Procedures for collection and transmission of specimens and recording of results

(c)  Methods whereby screening programs and genetics services for children now provided or proposed to be offered in the state may be more effectively evaluated, coordinated, and consolidated.

Genetics and Newborn Screening Advisory Council Membership

Per Section 383.14, Florida Statues– “There is established a Genetics and Newborn Screening Advisory Council made up of 15 members appointed by the State Surgeon GeneralThe council shall be composed of two consumer members, three practicing pediatricians, at least one of whom must be a pediatric hematologist, a representative from each of four medical schools in this state, the State Surgeon General or his or her designee, one representative from the Department of Health representing Children’s Medical Services, one representative from the Florida Hospital Association, one individual with experience in newborn screening programs, one individual representing audiologists, and one representative from the Agency for Persons with Disabilities. All appointments shall be for a term of 4 years. The chairperson of the council shall be elected from the membership of the council and shall serve for a period of 2 years. The council shall meet at least semiannually or upon the call of the chairperson. The council may establish ad hoc or temporary technical advisory groups to assist the council with specific topics which come before the council. Council members shall serve without pay. Pursuant to the provisions of s. 112.061, the council members are entitled to be reimbursed for per diem and travel expenses.”

To apply for consideration for advisory council membership please complete the following application: Department of Health Appointment Questionnaire

The Next Genetics and Newborn Screening Advisory Council Meeting 

WHEN:

August 24, 2018, 9:00 AM  

WHERE:

Bureau of Laboratories
Porter Auditorium
1217 N. Pearl Street
Jacksonville, FL 32231

MEETING MATERIALS:

PURPOSE:

Florida Genetics and Newborn Screening related topics.

Pursuant to the provisions of the Americans with Disabilities Act (ADA), any person requiring special accommodations to attend this meeting is asked to advise the agency at least 48 hours before the meeting by contacting the Florida Newborn Screening Program at (850) 245-4201.

*Adjournment time is approximate, depending on completion of the advisory council business.

Under Florida Law, e-mail addresses are public records. If you do not want your email address released in response to a public records request, do not send electronic mail to this entity. Instead, contact this office by phone or in writing.

Please contact The Newborn Screening Program at (850) 245-4201 or by email at CMS.NBS@FLHealth.gov, if you have any further questions.

Past Meetings 

Genetic and Newborn Screening Advisory Council Task Force  

The Genetic and Newborn Screening Advisory Council has established a task force on Pompe Disease and Mucopolysaccharidosis Type 1 (MPS I). The purpose of this task force is to obtain information regarding the ability to distinguish between the various forms of these disorders through newborn screening and assess the Newborn Screening Program’s capacity and capability to screen for these disorders. For more information about the Task Force, please click here