Statistics and Data Requests

Thank you for your interest in obtaining data from the Florida Department of Health’s Trauma section.

Data request applications are judged on the project’s scientific merit, methodology, data security procedures, potential benefit to the Department and consistency with research goals of section, Florida Statutes. Data requests will only be approved in cases where the project meets the appropriate criteria.

To begin a data request, a requester should visit the DOH Trauma website Trauma Registry tab and review the Trauma DUA requirements. If the requestor meets the requirements, the requestor then downloads and completed the Trauma DUA and submits the completed DUA to: Trauma.Registry@flhealth.gov. If the project proposal is approved, the Trauma section will work with the requester to complete the Data Use Agreement (DUA) and, where necessary, the Department Institutional Review Board (IRB) application. Please note that review of data requests by the Trauma section and the Department IRB are two separate processes. Detailed information regarding the Department IRB application process can be found at the website FLhealth.gov/provider-and-partner-resources/research/irb/.

Thank you for your interest in obtaining Florida vital records from the Florida Department of Health’s Bureau of Vital Statistics.

Because vital records data include health-related and personal information that could identify individual respondents, these data are considered confidential under Florida Statute 382.025 (3)(d). However, the Bureau of Vital Statistics may provide exceptions to the statute for the release of certain data.

Each application is judged on its scientific merit, methodology, data security procedures, benefit to the Florida Department of Health (DOH) and the public, and consistency with epidemiologic research goals of Florida Statute 381.0031. Requests for confidential data will only be granted in cases where the project meets the aforementioned criteria and no other practical means of completing the project exists.

To begin the vital records request, complete the Vital Records Data Use Agreement Form (581K doc) and, where necessary, the DOH Institutional Review Board (IRB) application. Review of the proposals by the Bureau of Vital Statistics and the DOH IRB are two separate processes, and applicants must have an approved Vital Records Data Use Agreement first to apply for IRB review. Lists of fields contained in the vital records files are provided in the codebooks which are located on our Publications Page. The application for requesting vital statistics data may be accessed by downloading the Vital Records Data Use Agreement Form (581K doc). A draft using this form should be sent as an attachment to ResearchData@flhealth.gov After the draft has been deemed acceptable for the review board, the final hardcopy with notarization and original signatures should be sent to the following address:

Bureau of Vital Statistics
Florida Department of Health
Attn. Gary Sammet
1217 N. Pearl St.
Jacksonville, FL 32202

Prior to initiating the IRB application process, we strongly encourage interested parties to consult with the DOH Ethics and Human Subjects Research Protection Program regarding whether their data request meets the criteria for IRB review under federal regulations. Review by the DOH IRB is required for all research involving human subjects.

An estimate of costs will be sent to the applicant for approval before the work begins. Once payment and supporting documentation are agreed upon by both parties, the data will be provided. A waiver or reduction of fees authorization by Florida Statutes 382.0255(1) will be considered only if the intended use of the data will have a direct health-related benefit to Florida citizens.

Thank you for your interest in obtaining population-based surveillance data from the Florida Department of Health.

Data request applications are judged on the project’s scientific merit, methodology, data security procedures, potential benefit to the Department and consistency with epidemiologic research goals of section 381.0031, Florida Statutes. Data requests will only be approved in cases where the project meets the aforementioned criteria.

To begin a data request, please visit the links below and follow the data request guidelines. Where necessary, a Department Institutional Review Board (IRB) application may also need to be provided.

Please note that review of data requests and the Department IRB are two separate processes, and applicants must have an approved data use agreement to apply for IRB review. Detailed information regarding the Department IRB application process can be found at the website: FLhealth.gov/provider-and-partner-resources/research/irb

Florida Cancer Data System
If you are interested in using Florida Cancer Data System data, please visit this link: FLhealth.gov/diseases-and-conditions/cancer/cancer-registry/data-dissemination .

Florida Birth Defects Registry.
If you are interested in using Florida Birth Defects Registry data, please visit this link: FLhealth.gov/diseases-and-conditions/birth-defects/FBDRDataRequests.html

Behavioral Risk Factor Surveillance System (BRFSS)
For BRFSS data requests, please fill out the form found here and send it to BRFSS@flhealth.gov. Technical assistance can also be provided for those interested in conducting their own data analysis with SAS or SUDAAN. Prevalence data for the major questions is available at the CDC BRFSS website at CDC.gov/brfss, you can view the estimated prevalence rates with 95% confidence intervals by demographic break down such as age gender race/ethnicity and socioeconomic status.

Florida Youth Surveys
For Florida Youth Survey data requests, please fill out the form found here and contact the Florida Youth Survey Coordinator at FloridaYouthSurvey@flhealth.gov .

Florida Pregnancy Risk Assessment Monitoring System (PRAMS)
To request a PRAMS data set, please see the data request guidelines found here. If you want Department statisticians to conduct analysis for you and provide you with the results, please send your request to:

FL PRAMS Coordinator
Florida Department of Health
4052 Bald Cypress Way, Bin# A-24
Tallahassee, FL, 32399-1720
Phone: 850-558-9684
Fax: 850-414-6091

In your request, please explain precisely which question(s) or variable(s) are of interest and how to analyze the data (e.g. data year, age or racial/ethnic group, region, etc.). All requests will be processed in a timely manner on a first-come, first-serve basis. Once your study is finished, please provide a courtesy copy of any articles and/or reports to the Department of Health based on the PRAMS data provided from the request.

Thank you for your interest in obtaining data from the Florida Department of Health’s Division of Medical Quality Assurance.

Data request applications are judged on the project’s scientific merit, methodology, data security procedures, potential benefit to the Department and consistency with research goals of section [add statute if applicable], Florida Statutes. Data requests will only be approved in cases where the project meets the appropriate criteria.

To begin a licensure data request, a requester should access the Public Data Portal website: mqa-internet.doh.state.fl.us/downloadnet/GeneralInformation. To begin a public record data request, a requester should visit the Department of Health’s Public Record Request website: floridahealth.gov/about/sunshine-info/public-records-requests/. If the project proposal is approved, the Records Team will work with the requester to complete the Data Use Agreement (DUA) and, where necessary, the Department Institutional Review Board (IRB) application.

Please note that review of data requests by the Records Team and the Department IRB are two separate processes. Detailed information regarding the Department IRB application process can be found at the website FLhealth.gov/provider-and-partner-resources/research/irb/ .

Thank you for your interest in obtaining data from the Florida Department of Health’s Division of Emergency Preparedness and Community Support (DEPCS).

Data request applications are judged on the project’s scientific merit, methodology, data security procedures, potential benefit to the Department and consistency with research goals of section 401.30(4), Florida Statutes. Data requests will only be approved in cases where the project meets the appropriate criteria.

To begin a data request, a requester should submit a summary of their research project to EMSTARS@flhealth.gov. If the project proposal is approved, the Division of Emergency Preparedness and Community Support will work with the requester to complete the Data Use Agreement (DUA) and, where necessary, the Department Institutional Review Board (IRB) application. Please note that review of data requests by the Division of Emergency Preparedness and Community Support and the Department IRB are two separate processes. Detailed information regarding the Department IRB application process can be found at the website FLhealth.gov/provider-and-partner-resources/research/irb.

Thank you for your interest in obtaining data from the Florida Department of Health’s Bureau of Epidemiology (BOE).

Data request applications are judged on the project’s scientific merit, methodology, data security procedures, potential benefit to the Department and consistency with epidemiologic research goals of section 381.0031, Florida Statutes. Data requests will only be approved in cases where the project meets the aforementioned criteria.

To begin a data request, a requester should email a brief summary of their request to DCHPDataRequest@FLHealth.gov. If the project proposal is approved, the BOE will work with the requester to complete the BOE Data Use Agreement (DUA). and, where necessary, the Department Institutional Review Board (IRB) application.

Please note that review of data requests by BOE and the Department IRB are two separate processes, and applicants must have an approved RCPF to apply for IRB review. Detailed information regarding the Department IRB application process can be found at the website: FLoridahealth.gov/provider-and-partner-resources/research/irb.html