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The Florida Department of Health works to protect, promote & improve the health of all people in Florida through integrated state, county & community efforts.
Smith-Magenis Syndrome Resources
Contact the Florida Department of Health
- 850-245-4465
- BE@flhealth.gov
-
Mailing Address
Florida Department of Health
4052 Bald Cypress Way, Bin A13
Tallahassee, FL 32399-1721
The National Organization for Rare Disorders (NORD) is a non-profit patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD has a page dedicated to Smith-Magenis Syndrome.
Founded by two families with children who have Smith-Magenis Syndrome, the Smith-Magenis Research Foundation aims to advance scientific research leading to innovative treatment options for people living with Smith-Magenis Syndrome.
Connect with DOH