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The Florida Department of Health works to protect, promote & improve the health of all people in Florida through integrated state, county & community efforts.

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HIV Data Center

HIV/AIDS

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HIV/AIDS Surveillance Program

The goal of the HIV/AIDS Surveillance Program is to collect complete and accurate HIV data to analyze trends. HIV staff and partners use these data and trends to plan, carry out, and assess HIV programs statewide.

People with HIV (PWH) may be tested often to monitor treatment needs. This can lead to single cases being reported multiple times. Surveillance staff regularly check data to correct for this, both within Florida and within the CDC’s national database. Duplicate cases within the state are merged.

PWH may move out of state or out of the country one or several times during their lifetime. Cases identified as being reported first in another state are re-assigned as that state’s case. Cases for people who have resided in multiple states are identified either by comments on the Case Report Form or through the CDC's Routine Interstate Duplicate Review (RIDR) process. These deduplication activities are part of the ongoing surveillance process that occurs in every state.

The entire surveillance HIV/AIDS data set is reviewed in the deduplication process. That means that changes made affect both recently reported case counts and those from prior years. Each year, the HIV data for the previous calendar year and all previous years are finalized and frozen for reporting purposes on June 30. The frozen data are used in all data reports until the following June 30, when the continuously deduplicated HIV/AIDS data set will be finalized and frozen again.

Figure 1 (below) depicts a summary of newly diagnosed cases of HIV from the last ten years as of June 30, 2020. Summary health data are stored in the Florida Community Health Assessment Resource Tool Set (Florida CHARTS), Florida Health’s database for tracking the health status of the state. Visit Florida CHARTS to learn more about statistics for HIV, AIDS, and HIV-related deaths.

Figure 1

 Diagnoses of HIV, 2010–2019, Florida
2018–2019 change = -4%; 2015–2019 change = -2%

Diagnoses of HIV, 2010-2019, Florida

Diagnosis or Report?

Florida tracks HIV/AIDS cases by the year they were diagnosed and by the year they were reported.

  • Year of diagnosis is the year a person is first diagnosed with HIV/AIDS.
  • Year of report is the year a person's case is first reported to Florida Health and entered into the enhanced HIV/AIDS Reporting System.

The year of diagnosis and the year of report may be different for each case because there are specific requirements set by the CDC for when an HIV/AIDS case is considered reportable, even though the person has been diagnosed. There are many criteria that determine whether or not a case is reportable.

The following are examples of how HIV cases are diagnosed and reported:

  • Example 1:
  • Example 2:
In December 2015, a patient tested positive for HIV at a local hospital and met the reporting requirements for HIV. The hospital nurse reported the HIV case to the local county health department in January 2016. The new HIV case was entered into the HIV/AIDS Reporting System database in January 2016. In this scenario, the year of diagnosis is 2015 and the year of report is 2016.
A person living with HIV moves to Florida in February 2014 and visits a doctor in order to receive care and treatment. The patient reports a history of HIV in Texas. The physician in Florida orders a viral load test on the patient and the result is an undetectable viral load. The patient is currently not reportable because the case does not meet CDC’s case definition for a reportable case. In September 2014, the physician orders another viral load test and the result is a detectable viral load. The case is then reported to the county health department as a new diagnosis for Florida. The case is entered in the HIV/AIDS Reporting System database on October 2014. After surveillance staff follows up on the patient’s report of previous history in Texas, it is determined the patient’s first date of diagnosis is November 2005. In this scenario, the year of report is 2014 and year of diagnosis is 2005. However, once it is determined that the first diagnosis took place in Texas, the patient is no longer part of the Florida diagnosis case count. 

 

HIV Care Data

While it is important to understand the number of new HIV cases in Florida, it is also important to be aware of the overall number of people living with HIV in the state. We track this data because it informs decisions related to resource allocation to ensure all PWH in Florida have access to the care they need. Figure 2 presents the levels of HIV care of the people living with HIV in Florida. This model is updated annually.

Figure 2

PWH Living in Florida
Along the HIV Care Continuum, Year-End 2019

Persons with and HIV Diagnosis Living in Florida along the care continuum, 2019

Care Continuum Definitions

  • PWH: The number of persons with an HIV diagnosis living in Florida at the end of 2019
  • In Care: PWH with at least one documented viral load or CD4 lab, medical visit, or prescription from 1/1/2019 to 3/31/2020
  • Retained in Care: PWH with two or more documented viral load or CD4 labs, medical visits, or prescriptions at least three months apart from 1/1/2019 to 6/30/2020
  • Suppressed Viral Load: PWH with a suppressed viral load (<200 copies/mL) on the last viral load test from 1/1/2019 to 3/31/2020