HIV Data Center
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HIV/AIDS Surveillance Program Guides Public Health Services
The HIV surveillance program plays a vital role in how Florida determines HIV resource needs, program planning and evaluation. The goal is to collect complete and accurate data, and analyze trends in HIV. HIV staff and county partners use these data to plan, carry out and evaluate HIV programs and interventions.
Throughout the year, HIV Surveillance staff conduct data validation checks to ensure that cases are not reported twice within Florida or within the CDC’s national database. Duplicate cases identified within the state are merged together as one case. This is important because HIV is a chronic disease and infected people may be tested frequently as a way of monitoring treatment success.
Individuals with HIV may move out of state or out of the country one or several times during their lifetime. Cases identified as being reported first in another state are re-assigned as that state’s case. Cases who have resided in multiple states are identified either by comments noted on the Case Report Form or from CDC's Routine Interstate Duplicate Review (RIDR) Process (click here for more information on RIDR). These de-duplication activities are part of an ongoing surveillance process that occurs in every state. The entire surveillance HIV/ AIDS data set is reviewed in this deduplication process. That means that changes made affect both recently reported case counts and those from prior years. Each year, the HIV data for the previous calendar year and all previous years are finalized and frozen for reporting purposes on June 30th. The frozen data are used in all data reports until the following June 30th, when the continuously de-duplicated HIV/ AIDS data set will be finalized and frozen again
Figure 1 (below) depicts a summary of newly diagnosed cases of HIV Infection from the last five years, as of June 30th, 2018. Summary health data are stored in Florida Community Health Assessment Resource Tool Set (Florida CHARTS), the Florida Department of Health’s (FL DOH) database used to track the health status of the state. Health statistics for HIV, AIDS and HIV-related deaths can be found at this web link: http://www.floridacharts.com/charts/CommunicableDiseases/default.aspx.
What is the difference between diagnosis and report?
Florida tracks HIV/AIDS cases by the year they were diagnosed and by the year they are reported.
- Year of diagnosis is defined as the year a person is first diagnosed with HIV/AIDS.
- Year of report reflects the year the patient’s case is first reported to FL DOH and entered into the enhanced HIV/AIDS Reporting System.
The year of diagnosis and the year of report may be different for each case because there are specific requirements set by the CDC for when an HIV/AIDS case is considered reportable, even though the person has been diagnosed. There are many criteria that determine whether or not a case is reportable.
The following are examples of how HIV cases are diagnosed and reported:
- Example 1:
- Example 2:
Persons Diagnosed and Living with HIV (PLWH)
While it is important to understand the number of new HIV cases in Florida, it is also important to be aware of the overall prevalence, or number of people living with HIV in the state. We track these persons because it informs decisions related to resource allocations to ensure all people with HIV in Florida have access to the care they need. Figure 2 presents the levels of HIV Care of the people living with HIV in Florida. This model is updated annually.
The Diagnosis-Based Model of the HIV care continuum shows each step of the continuum as a percentage of the number of people diagnosed and living with HIV as of the end of 2017.
Persons Living with HIV: The number of persons known to be living with an HIV diagnosis (PLWH) at the end of 2017, from data as of 6/30/2018.
Ever in Care: PLWH with at least one documented Viral Load (VL) or CD4 lab, medical visit, or prescription from HIV diagnosis through 3/31/2018.
In Care: PLWH with at least one documented VL or CD4 lab, medical visit, or prescription from 1/1/2017 through 3/31/2018.
Retained in Care: PLWH with two or more documented VL or CD4 labs, medical visits, or prescriptions at least three months apart from 1/1/2017 through 6/30/2018.Suppressed Viral Load: PLWH with a suppressed VL (<200 copies/mL) on the last VL from 1/1/2017 through 3/31/2018.