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Data and Research

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Data and Research  

Estimated number of people with active epilepsy in Florida by age group

Total number of cases: 223,900

Number of cases for the ages 0-17: 27,300

Number of cases for the ages 18+: 196,600


Based on the 2015 BRFSS:

  • Approximately 114,800 Florida adults (1.9%) have ever been told by a doctor that they have a seizure disorder or epilepsy.
    • Among those, approximately 1/3 (33.3%) are currently taking prescription medication for their seizure disorder or epilepsy.
  • Approximately 84% of individuals with seizure disorder or epilepsy have some form of health insurance. This does not differ compared to individuals without epilepsy.

Based on the 2011/12 National Survey of Children’s Health:

  • Approximately 1.2% of children in the US have ever been diagnosed with epilepsy.
    • 0.7% currently have the condition.
  • Using Florida’s 2016 population of children ages 0-17 (4,225,364) and applying the national estimates of epilepsy.
    • 50,704 Florida children have ever been diagnosed with epilepsy.
      • 29,578 Florida children ages 0-17 currently have epilepsy.

In 2015, there were 16,494 hospitalizations with epilepsy listed as the principal diagnosis and 91,042 hospitalizations with epilepsy listed as any diagnosis.

Managing Epilepsy Well

The Managing Epilepsy Well Network (MEW) was established in 2007 to advance the science on epilepsy self-management by conducting high-quality research across a network of universities, collaborating with community stakeholders to implement activities, and broadly disseminating research findings. The MEW Network addresses the Living Well with Epilepsy (2003)[PDF-1.6MB] priority recommendations, and the Institute of Medicine Epilepsy Across the Spectrum 2012 recommendations related to accelerating, promoting, and disseminating epilepsy self-management research. The MEW Network is one of CDC’s Prevention Research Centers Program thematic networks.

* here’s the link back to the CDC MEW website*