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The Florida Department of Health works to protect, promote & improve the health of all people in Florida through integrated state, county & community efforts.

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Phelan-McDermid Syndrome Resources

Contact the Florida Department of Health

Based in Venice, Florida, it is the mission of the Phelan-McDermid Syndrome Foundation (PMS) to improve the quality of life for people affected by PMS worldwide by providing family support, accelerating research and raising awareness.

The National Organization for Rare Disorders (NORD) is a patient advocacy organization dedicated to providing information on resources and organizations serving individuals with rare conditions. NORD has dedicated a page for information related to Phelan-McDermid syndrome.

Support Groups:

Phelan-McDermid Syndrome Foundation Family Support