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The Florida Department of Health works to protect, promote & improve the health of all people in Florida through integrated state, county, & community efforts.

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Anencephaly Resources

Contact the Florida Department of Health

  •  850-245-4465

    Mailing Address

    Florida Department of Health 

    4052 Bald Cypress Way, Bin A13 

    Tallahassee, FL 32399-1721 

The National Institute of Neurological Disorders and Stroke (NINDS) provides information to individuals about conditions affecting the brain and nervous system.  The NINDS has a page dedicated to Anencephaly Information.

The Centers for Disease Control and Prevention has a dedicated webpage for information about Anencephaly.  On this page, individuals can find information about a diagnosis, what to expect during pregnancy and what to expect once the baby is born.


Support Groups:

Anencephaly Info

Perinatal Comfort Care

Luca Hill Acrania and Anencephaly Foundation