Fragile X Syndrome Resources
The National Fragile X Foundation works to increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy and increase funding for research.
Founded in 1994, the FRAXA Research Foundation is dedicated to finding a cure for Fragile X syndrome through the funding of continued research of this condition.
The National Organization for Rare Disorders (NORD) is a patient advocacy organization dedicated to providing information on resources and organizations serving individuals with rare conditions. NORD has a page dedicated to Fragile X syndrome.