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The Florida Department of Health works to protect, promote & improve the health of all people in Florida through integrated state, county, & community efforts.

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Smith-Magenis Syndrome Resources

Contact the Florida Department of Health

  •  850-245-4465
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    Mailing Address

    Florida Department of Health 

    4052 Bald Cypress Way, Bin A13 

    Tallahassee, FL 32399-1721 

The National Organization for Rare Disorders (NORD) is a non-profit patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD has a page dedicated to Smith-Magenis Syndrome.

Founded by two families with children who have Smith-Magenis Syndrome, the Smith-Magenis Research Foundation aims to raise awareness and fund research to find a treatment for Smith-Magenis Syndrome. 

Support Groups

Parents and Researchers Interested in Smith-Magenis Syndrome