Trisomy 18 Edwards Syndrome Resources
Support Organizations for Trisomy 18 and Related Disabilities (SOFT) is a network of families and professionals dedicated to providing support and understanding to families affected by this condition. Founded in 1980, SOFT holds annual family and medical conferences in various cities around the country as an effort to gather and exchange information, ideas, scientific data, and share family experiences.
Founded in 2003, the Trisomy 18 Foundation works together with community members to advance how Trisomy 18 is understood and how health professionals respond to parents who have received a new diagnosis. The Trisomy 18 Foundation aims to provide a supportive community for everyone impacted by this condition.
The National Organization for Rare Disorders (NORD) is a non-profit patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD provides brief introductions for patients and their families to more than 1,200 rare diseases. To learn more about Trisomy 18, click here.