Rare Disease Advisory Council

The Rare Disease Advisory Council was established in section 381.99, Florida Statutes, to assist the Florida Department of Health in providing recommendations to improve health outcomes for individuals residing in the state who have a rare disease.

Council Membership and Appointments

The Rare Disease Advisory Council was established in section 381.99, Florida Statutes. The council is comprised of 22 members, serving 4 year terms. A total of 10 members appointed by the Governor, 6 members appointed by the President of the Senate, and 6 members appointed by the Speaker of the House of Representatives.

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Upcoming MeetingS

Previous Council Meetings

Previous Subcommittee/Workgroup Meetings 

Reports and Publications

Beginning July 1, 2022, the Rare Disease Advisory Council will submit an annual report to the Governor and State Surgeon General which describes the activities of the advisory council throughout the year as well as its findings and recommendations regarding rare disease research and care.

• Legislative Report 2025
• Legislative Report 2024
• Legislative Report 2023
• Legislative Report 2022